As a national expert on data sharing, Kristen Rosati was called to moderate a high-profile panel of experts during a session of the National Academies of Sciences, Engineering and Medicine’s workshop on Optimizing Public-Private Partnerships for Clinical Cancer Research.
As a member of the planning committee, Kristen, along with Otis Brawley of Johns Hopkins University, facilitated the panel on Enhancing Data Sharing for Public-Private Partnerships for Clinical Cancer Research. The session provided insights on the roles various groups play in the process, including from government, research institutions, patients, sponsors, funders, and publications. Panelists included members from NIH, Harvard University, the Leukemia and Lymphoma Society, Invitae/Ciitizen, Eli Lilly, Cancer Research UK/Cancer Research Horizons, the Journal of the American Medical Association, and the New England Journal of Medicine.
Kristen also gave an introductory talk on the legal landscape for data sharing. She focused on the challenges in de-identification of data and keeping up with evolving federal and state laws.
Kristen, a past President and Fellow of the American Health Law Association, is a nationally sought-after expert and speaker on big data and HIPAA compliance. She brings extensive knowledge related to data privacy and security, particularly on HIPAA and protecting sensitive health care information.
Presentation slides are available on the workshop website.