Kristen Rosati Interprets New Arizona Genetic Testing Consumer Protection Law for DataGuidance
Following the effective date of a new Arizona genetic testing law, Kristen Rosati explained how the law protects consumers’ private information provided to direct-to-consumer genetic testing companies for DataGuidance.
Asked to comment on the new law, Kristen said it requires companies provide a prominent, public privacy notice about the company’s data practices. Kristen explained the new law also requires four forms of consent to indicate what can be done with customers’ genetic data. Kristen emphasized the new law has limited impact on health care organizations and clinical laboratories providing treatment and organizations engaged in medical research. Kristen explained: “this is a good development – and one I understand was supported by direct-to-consumer testing companies – because it assures individuals that their most private information will be protected when they sign up for genetic testing services.”
The Best Lawyers in America© 2021 Phoenix Health Care Lawyer of the Year, Kristen has deep experience in data sharing and genomic privacy, among other areas. She is a Past President of the American Health Law Association and is sought-after speaker on these issues.